Resources
Access for Caregivers:
- https://www.healthit.gov/playbook/pe/chapter-4/(link is external)
- https://www.healthit.gov/how-to-get-your-health-record/get-it/(link is external)
Care Coordination:
- http://contemporaryclinic.pharmacytimes.com/news-views/mobile-health-technology-improves-health-outcomes-in-children(link is external)
- https://www.ahrq.gov/professionals/prevention-chronic-care/improve/coordination/index.html(link is external)
- https://medicalhomeinfo.aap.org/tools-resources/Pages/Care-Coordination.aspx(link is external)
- http://pediatrics.aappublications.org/content/pediatrics/133/5/e1451.full.pdf(link is external)
Children’s EHR Format:
- https://healthit.ahrq.gov/health-it-tools-and-resources/pediatric-resources/childrens-electronic-health-record-ehr-format(link is external)
- https://healthit.ahrq.gov/sites/default/files/docs/citation/children-ehr-format-enhancement-final-recommendation-report-abridged.pdf(link is external)
Consent2Share:
- https://www.samhsa.gov/health-information-technology/samhsas-efforts(link is external)
- https://gforge.hl7.org/gf/download/frsrelease/1259/16175/Consent2Share%20FHIR%20%20Profile%20Design.docx(link is external)
Human Centered Design:
- https://medium.com/dc-design/what-is-human-centered-design-6711c09e2779(link is external)
- https://medium.com/@katiemccurdy/human-centered-design-process-diagram-ac8f5eeb411b(link is external)
ONC Interoperability Standards Advisory:
- https://www.healthit.gov/isa/(link is external)
- Examples of relevant sections:
- Care Plan: https://www.healthit.gov/isa/ii-b-care-plan(link is external)
- Immunizations: https://www.healthit.gov/isa/i-g-immunizations(link is external)
- Consent: https://www.healthit.gov/isa/recording-patient-preferences-electronic-consent-access-andor-share-their-health-information-other(link is external)
- Data Segmentation: https://www.healthit.gov/isa/data-segmentation-sensitive-information(link is external)
ONC 2015 Edition Certification:
- https://www.healthit.gov/topic/certification-ehrs/2015-edition(link is external)
- https://www.healthit.gov/topic/patient-access-to-medical-records/learning-module-apis-and-health-data-sharing(link is external)
Usability/Safety:
- https://www.nist.gov/publications/nistir-7865-human-factors-guide-enhance-ehr-usability-critical-user-interactions-when(link is external)
- https://www.nist.gov/publications/nistir-7804-1technical-evaluation-testing-and-validation-usability-electronic-health(link is external)
App Gallery (Samples):
- PatientLink Enterprises, Inc. MyLinks FHIR App(link is external)
- Boston Children’s Hospital TriVox Health FHIR App(link is external)
- Boston Children’s Hospital Growth Chart FHIR app(link is external)
- Boston Children’s Hospital MPR Monitor FHIR App(link is external)
References:
Child and Adolescent Health Measurement Initiative. Data Resource Center for Child and Adolescent Health. 2016 National Survey of Children’s Health (NSCH) data query. Retrieved from www.childhealthdata.org(link is external).
Cohen E, et al. “Children with medical complexity: an emerging population for clinical and research initiatives.” Pediatrics (2011); 127(3):529–538.
McPherson, Merle, et al. "A new definition of children with special health care needs." Pediatrics 102.1 (1998): 137-139.
Turchi, Renee M., et al. "Patient-and family-centered care coordination: A framework for integrating care for children and youth across multiple systems." Pediatrics 133.5 (2014): e1451-e1460.
U.S. Department of Health and Human Services, Office of the National Coordinator of Health IT. Interoperability Standards Advisory. Retrieved from https://www.healthit.gov/isa/(link is external).